CAN-PCC has put out a survey on its draft of recommendations for Long Covid (PCC = Post Covid Condition) that anyone can comment on. They're asking us for evidence of any claims we have, and it closes Wednesday night (Nov. 27).
Their recommendations are a whole lot of diet, exercise, and CBT and virtually nothing promoting any type of tests to help determine if someone has Long Covid, not even a d-dimer test, or any kind of medications to try. It explicitly says NOT Taurine based on a study that tests hand strength with and without use, completely ignoring studies that show a significant improvement in tinnitus, with some implications for neurological improvements after Long Covid. It's a curious inclusion in the survey. Nothing about Metformin or Paxlovid. And definitely nothing about prevention with N95s or cleaner air.
I commented that offering CBT to someone with a physical illness is patronizing. Would they suggest it to heal a broken leg, too?? Long Covid is a PHYSICAL illness. The body is invaded by a virus wreaking havoc in so many different places that it will take a concerted effort to create a simple and effective test for it. So, apparently, they're just going to skip that initiative.
Brian Hughes posted his comments - and some of the questions - in The Science Bit. Check it out, then craft your own responses. They're asking for feedback, so we should chime in. BUT isn't it curious that an official body financed by the Public Health Agency of Canada is seeking out random public comments through Cochrane Reviews instead of, you know, getting the best scientific advice possible from teams of scientists?? Public policy on health initiatives for a serious illness shouldn't be determined by a majority rule by the public, but, if it is, then we have a duty to comment.