I had never heard of Healthcare Navigators before, and it seems they don't exist as much in Canada as they do in the more expensive and privatized healthcare to the south (except for Indigenous needs), but they're becoming more of a thing here. In Ontario, some hospitals have them, and we're apparently leading the way to integrating a navigator even before an official diagnosis, but I didn't encounter any and don't know how to find one. Believe me, I've looked. If you're pregnant, you can get a doula to help you through all the issues that come up when you're at your most vulnerable and being bombarded with contradictory information. Cancer is very similar. It's just way too confusing to navigate alone. I'd like one that comes around to appointments with me, not one that stays in the hospital. Without a partner, I've had to rely on my barely-adult children to come to my appointments and try to make sense of everything. They have exams to study for and essays to write. This isn't a burden I wanted them to take on, and there's so much I would have liked to have known.
It would have been great if someone mentioned shaving my pits ahead of time. It's not something I ever do, and they put surgical tape right up in your pits, then send you home with arm exercises. I couldn't raise my arms without ripping out the hairs, and I had to get my poor children in there with tiny scissors freeing me from my own physical constraints. It also would have been great to have someone suggest I DON'T do both surgeries at once. Yes, it's fewer times under anesthetic, but it's a longer time, which can be worse. And the after care for one (plenty of walking after the oophorectomy) was contraindicated for the other (bed rest after the mastectomy). Now I know, but it's useless information to me at this point.